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Monday, September 16, 2013

Gastroparesis Journals, Poetry, and Mentorship Program

I have a favorite poem that I wanted to share with all of you. It has been my favorite since high school. It really spoke to me because for the past few days, I've been very sad. Sometimes, it just seems like the Gastroparesis (GP) cycle is endless. Also, it feels like I'll never get better. I'm not usually so negative, but vomiting for the past three days and having the new doctor write me off just made me a bit depressed. Then, I thought about my favorite poem. It has always spoken to me and cheered me up when I've been at my lowest. It made me realize that I need to keep going. That things will get better and that I have the best Gastroparesis Warrior network that anyone could have.


"'If'
By: Rudyard Kipling


If you can keep your head when all about you
Are losing theirs and blaming it on you,
If you can trust yourself when all men doubt you,
But make allowance for their doubting too;
If you can wait and not be tired by waiting,
Or being lied about, don’t deal in lies,
Or being hated, don’t give way to hating,
And yet don’t look too good, nor talk too wise:

If you can dream—and not make dreams your master;
If you can think—and not make thoughts your aim;
If you can meet with Triumph and Disaster
And treat those two impostors just the same;
If you can bear to hear the truth you’ve spoken
Twisted by knaves to make a trap for fools,
Or watch the things you gave your life to, broken,
And stoop and build ’em up with worn-out tools:

If you can make one heap of all your winnings
And risk it on one turn of pitch-and-toss,
And lose, and start again at your beginnings
And never breathe a word about your loss;
If you can force your heart and nerve and sinew
To serve your turn long after they are gone,
And so hold on when there is nothing in you
Except the Will which says to them: ‘Hold on!’

If you can talk with crowds and keep your virtue,
Or walk with Kings—nor lose the common touch,
If neither foes nor loving friends can hurt you,
If all men count with you, but none too much;
If you can fill the unforgiving minute
With sixty seconds’ worth of distance run,
Yours is the Earth and everything that’s in it,
And—which is more—you’ll be a Man, my son!"
Poem can be found at: http://www.poetryfoundation.org/poems-and-poets/poems/detail/46473


The meaning behind the poem is this:

"‘If‘ by Rudyard Kipling: About the poem

The poem ‘If’ by the India-born British Nobel laureate poet Rudyard Kipling is a poem of ultimate inspiration that tells us how to deal with different situations in life. The poet conveys his ideas about how to win this life, and after all, how to be a good human being.

The poem, written in 1895 and first published in ‘Rewards and Fairies’, 1910 is 32 lines long with four stanzas of eight lines each. It is a tribute to Leander Starr Jameson. The poem is written in the form of paternal advice to the poet’s son, John. You may read more about the poem at Wikipedia.

For the theme, as already told, the poem basically tells us the conditions that we should meet to succeed in life and make this life happy and a beautiful one. The whole poem is written in a single complex sentence. So all the subordinate clauses begin with ‘if’ and the main clause concluding the entire theme comes at the end, and the poem ends with a full stop.

This structure of the poem was important to achieve the conditional goal. The poet speaks of the achievement at the end, after discussing all the requirements to reach there. This structure is actually symbolic in suggesting that you can get the rewards only after you have fulfilled the preconditions. Moreover, this makes the readers eager to know what would happen when we meet all these conditions, thus retaining the curiosity and interest till the end.

And, as the main theme of the poem is a combination of so many if’s, the title ‘If’ is an apt one for the poem."
The meaning of the poem can be found here: http://englicist.com/summary-analysis/poem-if-rudyard-kipling-summary-explanation




There are several pen pal groups in the Gastroparesis community, so I wanted to put out a warning to everyone:

**WARNING** Any Pen Pal groups that you join is to get to know people. If you feel comfortable, friend them, and then share your private information with them. The admins should NEVER ask you for your personal information, unless you get to know them and you want to share your information with them as pen pals, but that's if you are comfortable enough. Just be careful. Your personal information should not be posted on the wall for all to see, because you never really know who is looking at it. The admins try to screen our groups carefully, but occasionally, we miss someone who may be a scammer.

I just wanted to caution anyone who is joining a pen pal group because I've had that happen and it's a very scary feeling, especially if someone tries to steal your identity. I've had this happen to me, which is why I just want to caution people to be careful. Pen pal groups can be amazing because they make you feel less isolated and alone, and it's nice to get real mail instead of spam for a change. Just be diligent. And your information should NOT be in the files section of the group for all to see. Pen pals usually only need your address and maybe your birth month and day to send you things on your birthday. You don't have to give them the year unless you know that person and trust them completely. I'll reiterate, just be careful with who and where you give out your personal information.









We've added a mentorship program to the group so you can get or give support to another member of our community. I am excited to see all of us build stronger relationships with each other and hope you'll join. Facebook has implemented a mentor/mentorship app in the groups now. I have turned it on in our group. There are a lot of mentorees that could use mentors, so far!

If you would like to read about the program, it's below:

https://newsroom.fb.com/news/2018/08/people-can-now-find-mentors-and-mentees-in-groups/

If you would like to sign up to be a mentor (and please don't be nervous about it, because you could really make a difference in someone's life. If you are worried about mistakes, don't be. Mistakes are a learning tool anyway - it's not a mistake if you can learn from it. Plus, instead of having a pen pal group, this is easier and more personal) or a mentoree, please see the left sidebar of the group that says "Mentorship" and here is a link:

https://www.facebook.com/groups/strongerthanGP/mentorship_application/


Here's how the program works:

You sign up, match yourself with a partner, and get helpful conversation starters each week so you get to know each other better better. It's up to you how much time you want to spend together and what goals you want to work towards. It's a new feature FB just implemented and I thought it would be a great idea to add it to the group. I just wanted to point out that option, in case you would be interested in it. It is an option to the left of the group’s feed, under “mentorship.”


Please feel free to send the group link to any friends who might be interested in joining. If anyone is added to the group by another member, it's automatically declined, for the groups' safety. I have stories about this for why I made it a rule. If you have any questions, you can contact me, Emily Randolph Scherer. We just want to make sure that each group member wants to be here, and they also need to answer the questions. But, on a positive note, we LOVE having new members! <3









SMART PHONE APPLICATION - MYSYMPTOMS





If you have a smart phone, my friend Sarah recommended an app to me. It's called MySymptoms: Food Diary and it's a diary for your phone. You can add your medications, what you eat, how often you get sick, all of your symptoms, stress levels, sleep quality, energy level, bowel movements, and more. It's easy to keep up with it.

I downloaded it at the Google Play store.

The only drawback is that it's $2.99 for the application, but it's worth it since we all carry our phones with us everywhere - even when we go out to eat (as rare as that happens).

You can download your data and give it to your doctor as well. I downloaded it and would highly recommend it to anyone with Gastroparesis. It's easy to learn how to use and it is easier to add things to your phone than to write them down sometimes. But I know that we all carry phones with us. I'm still going to use my Gastroparesis journal and write in it but I'm also going to keep track of things on my phone now too. It never hurts to have a back up.












This is my Gastroparesis Journal. It's actually River Song's journal replica from Doctor Who.











Keep a written journal. Write down the date in each entry.

You do want to make it as detailed as possible and you might notice a pattern in yourself.


I started a Gastroparesis journal, which you know of from previous articles in this blog. My Gastroparesis diary is really useful when I'm not near my computer to blog. Write down what time you wake up, what time you take your medicine, what you took, what time you eat, how much you eat, and what you ate. Write down what time you get sick, with what you were sick with, how much, and make it as detailed as possible. Write down any questions you think of to ask your doctor, since the visits with them go by so quickly and you may forget your questions. My doctor actually copies my journal for my chart. This way, you can eventually recognize a pattern with yourself - what makes you sick and maybe what doesn’t. Since every GPer Is different, this is a way to find out what works for you. I know GP is trial and error when it comes to diet, but this written record (I have to admit, my brain fog and memory are terrible so it’s good to write things down) will help you so much. I even print out research or positive things and paste them or tape them in my journal too. I carry it with me everywhere, even when I actually get to leave the house and go to the pharmacy or the doctor. It can be a spiral notebook, binder, you can buy a blank journal from amazon or in a store, you can make anything a GP journal. Give it a try and see if it works for you.

It really helps to keep track of what's going on with my body for my doctor, including questions so that I don't forget to ask since I don't get a whole lot of time to talk to the doctor. I write in mine daily. I keep track of my medications, when I attempt to eat, when I vomit, if I have a bowel movement, and the times of all of it. I also vent in it because it's not healthy to keep your feelings bottled up, and writing helps me cope, but everyone has different coping mechanisms that help them. Your gastroparesis journal could be as simple as a spiral notebook. I would highly suggest that you start one, if you don't have one already, because it really does help keep track of things, especially if you have a hard time remembering things like I do. I call it, "GP brain."



















I'm also going to share a few images that have gotten me through the past few days. I usually cut out images I find like this and put them in my diary to remind me to be strong.

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