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Saturday, January 12, 2013

My Appt with the Mayo Clinic in Florida & Updates

It's been a few days so I'll catch you up on what's been going on.

The Nature Sleeping Aid actually worked for me and helped me sleep. The preggie pops and tummy drops are also helping to curb the nausea along with my medication. I'm still vomiting, but it's not as bad as it could be. The Quease Ease is amazing. It really does help when I inhale it. I've gotten some wonderful advice from the Gastroparesis Facebook group at:

I have a severe headache right now that I'm pretty sure is from dehydration. The headache is located at the top right part of my head above my forehead. It just aches. I drank an entire bottle of grape juice over the course of the past few days and I'm working on apple juice right now. I'm not sure if it's going to stay down. I even tried a little bit of caffeine to make sure that it wasn't caffeine related. Nothing is helping. I don't think it's a side effect of my medication but I guess the doctors at Mayo will know more and what to do about it when I get down there.

My doctor finally faxed my records down to the Mayo Clinic in Florida and they were able to fit me in on Monday because of a cancellation. My husband and I are driving down there tomorrow. We reserved a hotel room but I don't know if they are going to hospitalize me or not.

I wasn't able to sleep 1/8 - 1/9/13. I was up for two days straight because of stomach spasms and running to the bathroom. I also managed to pull a muscle in my abdomen while I was vomiting. It almost feels like I have a charlie horse in my side. The pain in my upper right side is still there, by my liver. I've had this pain on and off since March. The ERCP helped for a while, but it's back with a vengeance now. The surgical incision in my back that is still healing from the spinal cord stimulator is also really sore because I've been bending over my bucket and the toilet to get sick.

I've just been incredibly tired and weak. It takes everything I have to make it to the bathroom. I can't even take a shower by myself at this point because it takes too much energy to stand up. I've been a bit lonely too. I've noticed my patience has been pretty much non existent because I keep vomiting, having muscles spasms in my stomach, and not enough rest.

I haven't been the least bit hungry so I haven't been eating a whole lot. I have kept a daily planner for the past month detailing the times that I get sick, what I eat and when, and when the spasms start. I'm giving it to my doctor on Monday at my appointment. I've also been keeping a detailed journal and I've been using River Song's TARDIS journal to do so.

My stomach is incredibly swollen and everything I've tried to eat has either come back up or it's just sitting in my stomach. Nothing is moving downwards. It almost looks like I'm pregnant and it's pretty painful. The cats can't even touch my stomach without me yowling. I managed to sleep through my husband's birthday dinner because I felt so lousy. When I woke up to realize they went without me, it made me feel even worse.

I just ate some yogurt and I'm waiting for the stomach spasms to start. It usually starts about twenty minutes after I eat something. I also have a problem that's relatively new - when I take my pills or try to eat something, it feels like it gets stuck in my esophagus. I have to drink a lot to get it unstuck to go down into my stomach. I wonder if it's because my esophagus is swollen or damaged from all of the burning stomach acid I've vomited up. I'll have to remember to ask the doctor about that. I know a while ago, I had my esophagus stretched out by a GI doctor to make it wider so this problem wouldn't happen again, but that was years ago.

Oh, and I listed my medications out so that I would remember to tell the doctor what all I'm taking. I'm taking TWELVE different medications and most of them are for my stomach. It's hard though, because the pills don't always stay down. I have really bad anxiety but the medication usually comes back up so lately I've been having panic attacks. I haven't had those in quite a while.

I am really proud to say that the Gastroparesis page on Facebook that I help to admin is the third largest GP page on Facebook. That makes me really proud to be a part of it.


Will Moss said...

I'm sure you get a lot of 'Oh, I don't know what to say,' sort of stuff. So here's a Loneliness -1. I'm reading. You're being heard & prayed for.

emilysstomach said...

Thank you, Molly. That really does mean a lot. <3