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Monday, November 19, 2012

GI Doctor Visit Today

I went and saw my doctor. I didn't sleep last night because I vomited ALL NIGHT LONG! Ugh. I was feeling fairly OK until I got to the waiting room. Some of the doctors were running behind and it smelled like all of the women there had bathed in cheap gas station incense before sitting down. I stood up by the door, instead of sitting down, and eventually ended up sitting in the hallway with an emesis basin until I was called back into a room.

The doctor looked over all of my notes and basically told me that he didn't know what else he could do for me. He told me that I had a Motility disorder, nothing structural wrong, which I knew. I was diagnosed with Gastroparesis in March of this year.

None of the drugs are working for me (I've been on Bentyl, Zofran, Phenergan, Levsin, Motilium, and Nortriptyline). The Motility Specialist my GI doctor sent me to said my GP wasn't severe enough for her to treat. I think she's very wrong.

So, my GI doctor is referring me to the Mayo Clinic for treatment and I'm a bit scared. I vomit 6 to 8 times a day. I stay full for days, even up to a week and a half. I never seem to have gastric emptying - it's mostly all vomited back up. He's also testing my liver enzymes again, since they're usually high.

I've had severe insomnia because I stay up most nights just throwing up. I'm exhausted and my throat is burnt. I'm not hungry and my stomach is swollen. I'm just miserable.

My question to those more experienced than myself - what can I expect from the Mayo Clinic? Do you know how long it will take to get an appointment there? What are the treatment options when the drugs are failing to work? Has anyone else had much luck controlling their gastroparesis with the Mayo Clinic?

I've found these TREATMENT OPTIONS provided by the Mayo Clinic. None of them sound fun and I'm scared to death of a feeding tube.

I'm just scared I'm never going to finish college at this point.

1 comment:

Tiger said...

Ok, contact me since I know someone who works at the Mayo clinic, and maybe he has suggestions about the doctors etc. My phone number is in my facebook profile, I just have to stay away from computer except for short burst due to my eyes. -Anna L