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Wednesday, October 29, 2014

Pregnancy and Gastroparesis

I am featuring a series of guest bloggers to blog about things that I don't have personal experience with, who can better answer your questions. A lot of questions that I've received recently have to do with GP and Pregnancy. I don't have any experience with this but thankfully, I had two women offer to share their different stories with you and try to alleviate any questions that you have about pregnancy regarding GP. There is a group on Facebook, Pregnancy and GP, that might be able to help you and answer your questions there as well. It can be found here: http://www.facebook.com/groups/1402269456719758/.


These two, brave ladies are willing to share their experiences with you. If you have any further questions, please leave it in the comments so that they can answer them for you. I am grateful for all of my guest bloggers, for tackling the issues that I feel are important. I'm very grateful for their stories and I hope that you have a good read!




Image taken from http://pregnancycmwa.files.wordpress.com/2013/05/pregnancy-happy-face.jpg



My Pregnacy with GP
by: Julienne Floetke


I have had Gastroparesis for 6 years now. I was able to get pregnant very easily (which is such a blessing, I know it's not easy for everyone). I had a miscarriage with my first pregnancy last year and am 25 weeks pregnant right now. I was incredibly scared to get pregnant because of the GP. With my first pregnancy, I stopped taking the medicine I was on (Nortriptyline) due to the risks. It was extremely difficult coming off the medicine, but I didn't really have a choice. I chose not to go back on the medicine so that when I got pregnant again, I wouldn't have to worry about it. (I had surgery and had to wait 8 months to try again).

The first 17 weeks of this pregnancy were extremely challenging. I have never felt so sick in my life. I did not understand how there were so many people in this world and why people would continue to have babies if it was like that for everyone. It has definitely improved and my thoughts have also changed.

Seeing my little baby and feeling her move around is so worth the pain and struggles that go along with being pregnant and having GP. I've heard of many people getting better while they are pregnant though, so my story isn't the only way it could go!

Every pregnancy is different. I am still taking Zofran every night to prevent vomiting from morning sickness. I was scared about getting pregnant, but my want of being a mom overruled those feelings. Every day is different with pregnancy, just as it sometimes is with GP.

I've never thought about giving GP to her because no one else in my family has it. I never really thought of it as genetic, which it could be, I don't know. If she does get it though, I've learned so much through my journey I would hope to be able to help her. I pray that she is perfect and healthy though, of course.
I have mentioned on the forum before that I struggle really bad with vitamins. I've always gotten sick with vitamins so trying the prenatal, the prenatals without iron, the gummy prenatals, and Flintstones have taken a toll on my stomach.

I feel EXTREMELY guilty that I haven't taken vitamins (even a little consistently) since I was 8 weeks pregnant. I was trying to eat better to get more nutrients, but that went down the drain when I had a flare and then got kidney stones.

I have researched online about people not taking vitamins and everything pretty much seems negative. I hate not being strong enough to take them every day or even once a week. I feel like I'm failing and that is not a good feeling. I feel like I would do a better job of taking care of her outside of my body at this point. I'm praying she comes out healthy and well nourished. That's all I can do sometimes.

Kidney stones with bowel issues aren't very fun either, but because I deal with pain every day with my stomach, I just use my tactics to get through it. I try not to take Tylenol because I feel like that is something I do have control of and I just work through it. I get very down about having Gastroparesis and feel like it's extremely unfair to have to work so hard at things people can do without a problem. But I cry and get it out and focus on the things I can control.

Being chronically ill makes everything a challenge, and pregnancy is no different. However, those of us with GP are a rare breed. We are strong. Our bodies were made to have babies and I have trust in my body that it will do what it needs to in order to get her earth side healthy and whole. Thanks for listening!





My Pregnancy Story
By: Melinda Horne


I had two kids with GP (gastroparesis) but I did not know that I had GP at the time. During my first pregnancy, the most difficult part was getting pregnant. We tried for nine years before finally succeeding, and we had two early miscarriages before that and both were before eight weeks along.

We spent years having test and seeing fertility doctors with no real explanation as to why we could not get pregnant. I did know that I had PCOS (Poly-cystic Ovarian Syndrome) but found that I was ovulating every month with no luck.

The month we found out we were pregnant, the doctor was just as confused as us, as the test showed we did not ovulate that month. Clearly, it was wrong.

My pregnancy was pretty normal aside from the fact that I vomited twenty-four seven, and at two months pregnant, I left work because I couldn't work newspaper hours on no sleep/no energy. I couldn't even answer the phone at work as I was always in the bathroom.

One day I fell asleep at work at my desk and after that day I did not go back. I knew when the baby came that I would have to stop working at the newspaper, as both parents can't work 12 hour days anyway. I did better at home with the vomiting because I could lay down when nausea hit hard.

The last month was bad so the doctor put me on Phenergan and it worked but it also made me sleep for long periods of time, like twelve to eighteen hours. I only woke up to drink protein/meal shakes. I was obese and gained only eight pounds with her during the pregnancy.

I delivered vaginally in only eight hours (lucky for me since the epidural didn't work even after being stuck 5 times we never found the right spot), record time for a first pregnancy. She was an ounce shy of being 7 lbs and completely healthy.

About two years later we decided to try again and it only took us six months to get pregnant. I was still sick this time but learned from the first pregnancy not to eat certain heavy foods that did not stay down, and to supplement this with a lot of meal replacement shakes and soft foods.

I didn't have any complications until 29 weeks when we discovered that I had a slow amnio leak and was forced to drink 72 ounces of water a day. I lived in the bathroom. At about 32 weeks, my water level was low. So from that point on, we went to hospital twice a week to check fluid levels, and to have a bpp (bio-pyschical profile) and non stress test. My doctor kept a close eye on us. We got a lot of looks at the baby and everyone said that the baby would be a girl.

At 34 weeks, while having a bpp (bio-pyschical profile), while we looked at baby's breathing and took measurements, the tech and I discovered that it's actually a boy!

A week later at my bpp and stress test didn't score well. They did a more in depth ultrasound and the baby was not growing much. My fluid level was low, 10 is a good fluid level and 5 is danger zone, mine was 1.2. The doctor said they would have to treat me like my water broke and deliver me.

My body wasn't really ready and induction is long and painful. I delivered him the next day vaginally, without any major problems. He was born and weighed 5 lbs 7 ounces, and was small but healthy. We found out his lungs and everything was developed. He stayed with me and then went home with me after a few days.

I would highly recommend a good doctor that deals with high risk patients and babies. I am convinced that the doctor is why my son did so well. Being diagnosed with GP, I would want a doctor that at least was willing to listen to concerns and make sure you get the medical care you need while pregnant with GP, even if that means dealing with your GI doctor to manage you.

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