Find us on Google+ Gastroparesis: Progressional Timeline of Gastroparesis Request for Research

Sunday, May 19, 2013

Progressional Timeline of Gastroparesis Request for Research

Can you please send me a progression timeline of your Gastroparesis?


Please make a timeline and include years for - right before you got sick, when you got sick, doctors visits and what they told you, any pain specialists, testings, test results, and your symptoms when you first got sick and symptoms now. Also, what do you think caused it? Include that in your timeline, too.

In addition to that, please write the dates for when you discovered other medical conditions before and after Gastroparesis. Please include whether you still have your gallbladder. If you no longer have your gallbladder, please put the date/year that you had it taken out. Were you diagnosed with Gastroparesis after your gallbladder was removed?



I want to compare this to other people's progressive timelines. My goal is to find a common link between all of us and our GP.

Additionally, I can post results anonymously. If you wish to remain anonymous, just please let me know in the email that you send. I will ALWAYS respect your privacy.
PLEASE EMAIL YOUR TIMELINE TO EMILYSSTOMACH@GMAIL.COM AND INDICATE WHETHER YOU WANT TO BE ANONYMOUS OR NOT. ALSO, I NEED YOUR CONSENT STATED IN THE EMAIL THAT IT'S OK TO USE YOUR INFORMATION FOR RESEARCH AND PERMISSION TO HAND OVER ALL OF MY RESEARCH AFTER I WRITE MY PAPER TO A MEDICAL RESEARCHER WHO WOULD LIKE TO EXPAND ON MY RESEARCH.

Also, I wasn't trying to yell, but I wanted that to stand out since a medical researcher has gotten wind of the project. Keep in mind that when I hand over my research to her, names will be omitted but it could be a game changer for GP since this has never been done before.

I would like to receive a variety of samples - Idiopathic GPers, Diabetic GPers, Pediatric GPers, and Newly Diagnosed GPers. I want a variety of data to work with. So, if you think that you're not important because you're new to GP, you'd be wrong.

Also, please include your AGE for data grouping. Please also include your name and contact information in case I need to follow up with you in depth with your timeline for any questions/concerns.

Also, if you can't remember dates, you can approximate or just write out your GP medical history. I can work with that, too. Excel might be the easiest way to put your information down.

Thanks again for participating in this research project.



Again, please email your GP Progression Timelines to emilysstomach@gmail.com.

If you can, please make your outline in an excel spreadsheet. It makes it easier for you to read and easier for me to sort. If you are a new GPer, just write about what happened before and after you were diagnosed. Include any complications.

Additionally, you can insert a chart in Microsoft Word or Open Office and add as many rows as you need. It helps to organize your information better if you want to go that route.

If you can't make it the way shown above, then you can do it straight down the Word document. You can write stories to go with each date and procedure you had done. The more information I have, the better our research will be.



This is an example of what mine would look like:

March 2012 - Diagnosed with GP

May 2012 - Went to Mayo Clinic.



I am compiling research so that it might inspire doctors to do a fully funded study to help us. The research could be a stepping stone for new ways of understanding GP to make new treatment and technologies! We can all be a part of something big - something life changing through research.

I have also asked Pediatric Gastroparesis to send us their children's GP Timelines. By having children thrown in the mix, maybe we could spot the common GP link between adults and children. They have graciously agreed to help me out with this project. Also, if you are an adult GP fighter with a child who is also a GP fighter, please send me both of your timelines. As always, I will be glad to keep in anonymous, just make sure you add that to the email. Please share this article around to others who have GP so that I can have a variety of samples, which will be really important.

I'm also curious as to what other medical conditions have resulted after you were diagnosed with Gastroparesis. I also want to know how many people have developed Gastroparesis after having their gallbladders out. So, please include that in your email: emilysstomach@gmail.com. If you think things are too trivial to put in your timeline, do it anyway. It might be really significant!

The ultimate goal I have is to put all of the common links and issues together and present my research (again, you can be anonymous) for doctors to pull medical records and expand on the research.

Basically, we are all being proactive because we want a cure! And, I don’t think this has ever been done before, so you could be a part of something truly amazing for GP history and its future!
Post a Comment