Find us on Google+ Gastroparesis: August 2012

Friday, August 31, 2012

GPACT







I found two pictures, courtesy of GPACT that made me feel a bit better. I'm still vomiting, even after the ERCP. I'm still in pain from healing as well.

I met with the knee doctor yesterday and he's just waiting on the insurance to improve the trial.

More information can be found HERE.

So, I guess I'll wait. Hopefully, if I can control the knee pain, the vomiting will be cut in half since it's my pain response. I'm trying to figure out if the vomiting is actually coming from my gastroparesis or if it's caused by pain. It's a hard thing to determine.

I just feel very tired and weak. I have a cold, too. I've been sleeping a lot the past two days hoping I'll feel better.

GPACT could really use your help if you are interested in donating to help find a cure. The information can be found HERE.

They write on their Facebook page:

G-PACT Fact, Day 31- As we close out DTP Awareness Month 2012, we want to thank all of you for your support!

G-PACT is a non-profit which was founded on Aug. 23, 2001 by a group of patients. Most of us are on disability from this (and/or
a combo of other conditions) and saw the needs that so many patients had. We fight this every day along with you. We are all volunteers which can make this very difficult as our health is very unpredictable. You understand! A small handful of volunteers have run G-PACT, which has become international and reaches out to over 30 countries and all 50 states, from hospital beds, nursing homes, and home computers all over the world.

An added challenge is that we do not work from a centralized location and are scattered across the world. While this allows anyone to get involved, sometimes it can also take us a little longer to get everything done.

These are two unique challenges we face as we fight for you. We volunteer up to 80 hours a week during busy times, so we appreciate your patience and support as we work hard to bring you the best that we can given the circumstances! We are inspired to continue our work because we see progress and feel that our work has made an im-PACT.

There is still time to do things from this month. We extended the media letter writing campaign in order to accommodate some events taking place this weekend. Please send us your letters so we can begin putting final details into the project. Awareness and a cure is important as the death of another member harshly indicates.

If you would like to help us in any way to continue our work, we could use additional funding to continue our work, volunteers to lighten the load on a few of us, or other contributions to help us get things done. Increasing awareness is vital and awareness events are appreciated to help spread the word. If you would like to do anything, please contact us at contact@g-pact.org. Donations can be made through Paypal at accounting@g-pact.org or on our website at www.g-pact.org/giving.html. There are many ways you can help, even if not financially. We appreciate hearing from you and knowing you support the work that we do.

We do this for you and we fully understand what you are going through! That's why we are so passionate!

Even though today is the last day for DTP Awareness Month 2012, we do not stop. We do this year round. Look for activities coming up in 2013 and many ways to increase awareness and get involved in some of our political advocacy work. We are encouraged by the approval of Linzett yesterday, and hope to see many more in the near future until everyone has something that works well for them. We all want to eat normally again! :D

Sunday, August 26, 2012

Feeling Good Even When You're Feeling Down

I found this on Facebook today and I thought it was worth sharing. It almost made me cry. Even though I don't have fibromyalgia, this applies in my case with Gastroparesis as well. I thought it might help some people out there.

Chronic illness can have a devastating impact on your psychic well-being. No matter how agonizing the physical distress, the mental anguish can be more difficult for you to bear. Self-doubt, self-loathing, helplessness, powerlessness, anxiety and fear are some of the demons that people with fibromyalgia (FM) and chronic fatigue syndrome (CFS) battle daily. Illness can wipe out self-confidence and peace, and in their place leave painful doubts about what is real. So what can you do?




Part 1, Feelings of Self-doubt



"Am I really sick? Am I imagining this? Am I weak? Did I cause this ... if I had eaten better, exercised more, been more positive, would I be well today?"



Anyone who begins each day awakened by pain is convinced that something is wrong with his or her body. But when a doctor can't find anything and the family members grow suspicious, it is difficult not to doubt yourself or to drop into depression.



Recognize your self-doubting, self-blaming thoughts quickly. We talk to ourselves all day long, often in a negative manner. Learn to talk to yourself as you would talk to a good friend. You have an illness and you did not cause your illness. You need comfort and understanding. You deserve such care even from yourself when you are feeling ill.



Also, express your need for understanding and validation to family members and friends - ones you trust will listen and be in your corner. A good support group can be helpful too.



There are four parts to this series. I have included the other three below.



Part 2

Self-dislike


“How can I look attractive when I am so dependent? Who wants to employ someone who might be ill all the time? Why can’t I beat this illness? If I had greater integrity, I wouldn’t be so incapacitated.”



Persistent self-doubt results in self-dislike. It’s difficult to feel self-respect and self-affirmation when, in addition to feeling ill, you are overwhelmed with constant misgivings about your condition. This is especially true when these inner doubts are further fueled by the skepticism of others.



Liking ourselves seems to be a goal for all people. For whatever reason, we all tend not to like ourselves. We are critical of our own bodies, our hair, our size. In an effort to overcome our self-dislike, we base our worth on things that we can do better than others – make more money, keep a perfect house, have more accomplishments.



Our worth is not based on who we are but on what we can do or what role we play. Illness usually undermines that foundation of worth. We just cannot do what we once were capable of doing.



You must learn to go deeper to appreciate your true self – someone who doesn’t always feel well. Know and accept your limits. Focus on what you can do, not what you can’t. Count your blessings and learn to appreciate what you have.



One person with chronic illness looks in the mirror every day and says ten positive, self-affirming things to herself, such as, “You are ill, but you have the courage to get up and do what you can.”



Try to love yourself as you love those dearest to you. It is not easy, but love starts at home with you accepting you.


Part 3

Fear of Mental Illness



“Is this all in my head? If I were a more optimistic person, would I feel better? Am I neurotic or depressed? If I’m not sick, am I crazy?”



Possibly no fear is as harrowing as the fear of insanity. Loss of control is frightening; loss of mental control is terrifying. Our mind is our sense of ourselves and gives us our understanding of the world around us. To lose our minds is to lose connection with ourselves and communication with everyone and everything else. Images of what we would be like without our mental faculties are chilling images of blubbering, incoherent, incontinent unfortunates. Any threat then to our sanity is a dire threat to our well-being.



When you feel ill, horribly ill, yet the doctors cannot find anything wrong, when they suggest the cause is stress or imagined or mental, it is very difficult to keep trusting your own experience. Most likely you have endured the horrors of the diagnostic ordeals that you were put through, but your battles may not be over. New symptoms can crop up at any time, and you need to rely upon your instincts to determine if they are just FM/CFS-related, or if they require additional medical attention.



How do you ward off the fear of mental illness? You do this by trusting yourself and by accepting your illness. Learn more about your illness and its symptoms. Talk to others who share your condition and who experience similar symptoms (use our discussion board). Don't allow prejudicial messages from family members and from doctors to cause you to think that you are imagining your illness. Your fibro is REAL. Find a doctor who understands and who will work with you in finding what therapies are good for you. Above all, don't doubt yourself. No one knows your body as well as you do.


Part 4

Giving in to Illness – Or Giving Up



“How do I fight such an illness? What’s the use? Maybe if I get even sicker, people will see that I really am suffering. Maybe I should let myself go and really look sick. I would rather die than face this for the rest of my life.”



We all occasionally feel sorry for ourselves. But self-pity is not attractive; nor is it conducive to a healthy mind set. Feeling sorry for yourself fosters self-absorption and its consequent behaviors: complaining, petulance, demands for service and attention. This leads to loneliness and sadness.



When we stop trying to cope with our illness, to understand it, to deal with it as courageously as we can, then the illness can crush our spirit. Living with chronic illness is a soul-sized battle. If the flu can momentarily flatten us, chronic flu-like symptoms can be devastating! Excruciating pain and indescribable exhaustion both seem like torture. The men and women besieged by chronic illness need all the support of their spirits and all of the inspiring support of those who know and love them.



How do you keep up the fight? Take one day at a time. Get up right away in the morning. Don’t lie in bed and think hopeless thoughts. Live today, doing what you can, not letting yourself worry about what you might not be able to do tomorrow. Be thankful for what you have rather than think of what you have not. Strive for the courage to accept your illness with dignity – not denying it. Care for yourself wisely and care for others generously. Enjoy beauty wherever you find it.








It's nice to know that there are people on your side when you're feeling down and to know that how you feel is NOT your fault. I was feeling a bit down earlier because I started vomiting again but it's not my fault. I am tired of thinking that this is my fault. It's important for anyone with a chronic illness to remember that, no matter what you're told.



Thursday, August 23, 2012

Day 8 - Free of the Hospital!

They let me out today! The nurse woke me up around 11am and told me she was there to take out my Picc Line. I was half asleep and she took it out. The second nurse came in and gave me my paperwork and took me downstairs to the car. I didn't get a chance to see the doctor before I left but she told me to follow up with him as needed.

I'm still in a great amount of pain - especially when I eat but I guess that's to be expected since he cut into the muscle that controls bile release for digestion. I wonder how long that will take to heal.

So, I'm at home, trying to get comfortable and trying to rest. It's hard because my sleeping schedule is so off from the hospital. I didn't get enough sleep because I was poked every 15 minutes. Now, I can't seem to settle down to sleep but I'm tired and really anxious for some reason.

I feel like I'm about to have a panic attack and there's no reason for it. I'm tired of being ill. I get frustrated not being able to do things with my friends because my digestive system severely handicaps me. I just hate feeling left out of everything because I'm too tired or sick to participate. It's to the point where people don't even ask me to do anything anymore. That really sucks. =(

At the moment, I'm just really lonely and bored.

Wednesday, August 22, 2012

Day 7 - Hurts like hell ...

The charge nurse came in and lectured me about walking around the hospital while the nurse was administering my medication. The thing is, I had been walking around the hospital before yesterday - before the complications of pancreatitis hit. Now, it hurts so badly, I'm having trouble getting up and going to the bathroom. My abdomen feels like someone squashed it or possibly I had a line drive hit into it. The pain is sharp and intense.

I was asleep when the doctor came in to talk to me but she's going to draw more blood for lab work to see about my lipase levels. She told the nurse that they're slowly trending downward. I hope so, I'm ready to go home. I'm so tired and I want to actually get some sleep. Having pain medicine every 6 hours isn't really doing me any good - it hurts so much. I don't know why doctors decrease pain medication right after you have surgery, it seems weird to me. You think they would want to make me comfy until I go home.

I'll update more when I talk to the doctor.

Update: The doctor is moving me from IV medication to oral medication and is giving me full liquid trays to see how well I tolerate them. She has decreased my IV fluid intake from 200.0mL/hr to 100.0.mL/hr.

My room was like a party today. All I wanted to do is sleep, since I've gone without sleep for a week in the hospital.

I was visited by:
1. A Physical Therapist
2. An Occupational Therapist
3. My Doctor
4. The Nurse
5. The Tech
6. The Teaching Nurse
7. A Patient Advocate
8. A Patient Volunteer
9. The Floor's Chaplin
10. The Charge Nurse
11. The Charge Nurse's Director


I just really wanted to be left alone. I wish they would increase my pain medication because my side hurts so much. I'm hoping they'll let me go home tomorrow since I was able to keep down the liquids today. I really want some real rest. =(

So, I guess I will keep you updated on what happens tomorrow.

Tuesday, August 21, 2012

Day 6 - Day After Surgery (Oxygen Issues Again)


This marks the sixth day of my hospital visit. I'm waiting on the lab results to see if any of my enzymes have gone down. My side is still in some pretty bad pain from yesterday and my throat is sore. I hope they feed me today. I'm really REALLY hungry. Also, I have a fever but my blood pressure went down to 127/80. That's good news! Hopefully, it will stay down. It goes down with the pain medication. I don't think they'll send me home today but I'm not sure. They want to make sure that I don't develop pancreatitis.

You can read more about Pancreatitis HERE.


I was able to catch a couple of cat naps last night but woke up to horrible pain. I'm really exhausted. I'm hoping that when I get my Dilaudid and my Phenergan in a hour that I'll go to sleep. I think I'm going to stay up for a bit and see if food comes.

I think I overheard them saying in the surgical room last night that I could resume a liquid diet this morning. I thought I also overheard them saying when they took the breathing tube out that I stopped breathing for a few seconds. They had to put a breathing tube in an sedate me completely for the procedure because I had been vomiting so much. The anesthesiologist said that he didn't want me to vomit during the procedure and then drown in my vomit.

I'm not sure if I really did hear that or if it was imagined. I imagine it was true because they put me on more oxygen and kept me on it. My oxygen levels did go down to 80 day before yesterday. I wonder why it keeps doing that? It's worrisome. So, I have to wear oxygen all of the time now.

Right now, I'm just anxious. I'm scared about classes, I'm scared about the future, I mean, what if this isn't the solution? What if I keep getting liver stones? I also don't know what to do about the gastroparesis. I'm going to ask my doctor today if he found any results from my Smart Pill test later.

I need to make a follow up appointment with my knee doctor. Next up, is the trial surgery. *sigh*


UPDATE: The doctor just came in to talk to me about my ERCP. She said that the sphincter they were worried about was almost closed shut. When the doctor made the ERCP incision, he released it which caused all of this "gunk" to flow out of it. That included blackish looking sludge along with gravel shaped stones. So, their theory of the sphincter was right on the money. My labs are slowly going down and the doctor is going to increase my pain medicine (since I just had surgery and it's wearing off quicker now) and advance my food this evening. If all goes well, they're going to send me home. Again, they want to make sure that I don't develop pancreatitis.

I should have asked her for something to help me sleep. I haven't slept almost the entire time I've been in the hospital. I'm exhausted and I hurt. I can't get comfy. So, I guess we'll wait. I'll keep you guys updated.

Monday, August 20, 2012

Day 5 - Post Surgery

So, I had my ERCP done today. They found a sludge like material along with some gravel like material in my bile ducts. The doctor cleaned everything out and made an incision in the sphincter in my bile duct so that it will release bile for digestion easier.

The heart echo and EKG were both normal.

The doctor said that he was going to watch me overnight to see how I felt. And of course, I'm really annoyed now because I'm on pain medicine and my husband is trying to be super helpful. That's even more annoying when I'm on pain medicine. The kitchen just brought me food and he wouldn't let me eat it because I'm not supposed to have anything by mouth until tomorrow. I snuck a couple of carrots though ... and that lemon icing cake looked really tasty. =( I should have eaten it anyway, I'm starving. Now, I'm even grumpier. It's mean to put cake in front of me when I can't eat it.

My nurse is going to give me my antinausea medication and I'm going to try and sleep since there's nothing else to really do and I can't drink anything to ease the scratchiness in my throat.

But, everything's OK so far. I guess we'll wait and see if I develop inflammation of my pancreas.

Day 5 - Surgery Today

The nurse came in and took another EKG today since my last one was a bit abnormal. The doctor yesterday said that the Zofran could have caused that too and took me off of it. He said for me to list it as an allergy from now on. Another nurse came in and took an ECHO of my heart as well, just to follow up on the abnormal EKG. If everything looks fine, I'm having my ERCP procedure done at 2:00pm today.

It was hard to sleep last night. My night nurse lectured me and told me that my pain medicine was as needed, I didn't have to have it every two hours. The problem is that when I go to lay on that side, it's startling and wakes me up with a jolt because it hurts so much. Plus, people kept waking me up to get my vital signs and to draw up lab work - it's hard to sleep in a hospital. She's the second night nurse I've had who has lectured me about pain medicine.

I hope after today, I'll need less of it. I kept trying to explain that I have liver stones and they're painful but I guess the night nurses don't care. They probably don't like that I make them work.

I'm laying here pretty nervous and tired. I want to get this procedure over and done with. My doctor was also going to find out the results of the smart pill and share it with me. I've been placed on blood pressure medication as needed while in the hospital because my blood pressure keeps going up.

I guess I'll let you know what they find as soon as I know! Wish me luck!

Sunday, August 19, 2012

Day 4 - Telemetry

The nurse told me today that I'm going to be on telemetry today. I guess they're still monitoring my heart. My blood pressure came down with the medicine from 180/117 to 123/82 today. So, that's a big improvement. I feel a little better already! The doctor came in to see me and said that they would do the procedure for the ERCP tomorrow. He said it could be around late afternoonish like 2pm or 3pm. I'm a bit nervous and scared. I hope this procedure works and that I'm feeling much better after. I have a feeling that once they go in, they won't find anything.

I'm meeting with a cardiologist today because my qrt wave is prolonged in my EKG. My nurse said that Zofran can cause this but they're keeping me on telemetry as a precaution. So, I guess I'll be able to update you more on that later.

The Cardiologist came in and told me that they were going to keep me on blood pressure medication as needed until I left the hospital. After that, I need to make an appointment with my regular doctor and talk to him about my pressure. I also am having an echo of my heart done in the morning to see if there are any concerning abnormalities. The Zofran has been stopped and I guess they're waiting for the Zofran to leave my system before they can test my heart.

The Cardiologist did say that my blood sugar was high yesterday but they reran the tests and I'm not diabetic, so that's good news. I wasn't aware that there was a possibility that I could be.

I'm still wearing the oxygen and now I have a telemetry unit hooked up to me. I'm starting to have more wires than Frankenstein! =) Oh! I also just became the mayor of my hospital on Foursquare. Sad, right?

Saturday, August 18, 2012

Day 3 - Low Oxygen & Heart Murmur

The nurse just woke me up to give me medicine. Apparently, I had fallen asleep, sitting up, with my laptop in my lap at about 4am. My Oxygen intake dipped down to about 80. It's not supposed to be below 92. So, now I'm on oxygen today.

*grump*

I've called my nurse four times asking for medication. I guess when the bag runs out, she'll have to be in here eventually .... or I can just vomit on her shoes.

I'm really tired but was able to sleep some last night. I'm just tired at the moment and bored.

...and my nurse just cussed out the front desk. =)

I have been calling the front desk since 7am (because well, I didn't have to number to call her directly, so I hit the nurse call button). The front desk never told her I called so she came into my room to check on me.

I told her that I needed my medicine while dry heaving into a bucket. She got angry, started yelling, wrote her direct number on the board so I can call her directly when I need something. She then proceeded to storm out after giving me my medicine and yelling at the front desk.

She have me two Dilaudid. She said since I was written for one to two, and since she remembers me from last time, she said she knew I had chronic pain and upped the dose so it would help longer. She's a great nurse and I had her the last time I was here. She remembered me and I remembered that she's the one I can't play zombie games around! =)

The nurse got my on call doctor to come and take a look at me because of my blood pressure. It's been REALLY high. The bottom number is the 110s. So, the doctor listened to my chest and found a heart murmur. They're going to start me on blood pressure medication and take me down for a test for my heart. They're going to sonogram it to make sure that there's nothing sinister about the murmur. So, I guess that's a good discovery! I didn't know about that one.


My hospital room view.

Friday, August 17, 2012

Hospital Stay - Days 1 & 2

It started the night before last. I didn't sleep. I felt really nauseated and had this intense burning in my stomach that didn't quite feel like heartburn but I can't quite describe it. I couldn't even lay on my side, the pain was so intense. So, I decided to watch TV upstairs to not wake up my husband. While I was laying there, 5am rolled around. As it did, so did my stomach.

I ran to the bathroom and vomited. I noticed this dark black substance that almost looked like tar, in my stomach acid. It was blood. Now, I've vomited up blood before but it was usually a bright red color. This worried me because it was almost black. So, I called the GI practice and spoke with the doctor on call. He told me to try taking some pepto bismol and then wait until 9am to call the specialist I had been seeing for the Smart Pill.

And so, three stomach protests later, I called my regular GI doctor thinking that he could probably see me quicker. The nurse told me to go straight to the ER and that she would tell the doctor that I was on my way. So, I woke the husband up and headed for the ER.

... and because I had been vomited all morning without eating in the past few days, there was nothing left in my stomach so I couldn't vomit again for them to check for blood. I dry heaved like crazy, and still am. The ER doctor called my doctor and they decided to admit me. I really thought that they would give me fluids and send me home but my lab work had other plans.

My lipase is really high. My liver enzymes (the normal range is 30 to 40) are 300 to 400 and my blood pressure walking in was 180/117. I also had a slight fever 99.8 (it had been 101 the past two days). After telling my doctor about my lab work (which is the EXACT same issue I had in March - same numbers almost and everything), they decided it would be best if I could be monitored for a bit.

The doctor came in and told me about all of the lab results. He also explained to me about a procedure called ERCP which would show him if I had stones or not. Even though I don't have a gallbladder anymore, I can still get liver stones. More information about ERCP HERE.

In addition to finding and removing stones, he also said that they are going to make a little incision into the sphincter that would relax the muscle so that the sphincter will release bile easily and help me with digestion. I am having the ERCP procedure on Monday. I will need to be monitored for 48 to 72 hours afterwards because many patients develop Pancreatitis.

Well, I hope this helps some. Today was interesting though. I asked for a Picc Line because I have such horrible veins. The only vein they were able to find for an IV site was the inside of my right wrist. The doctor in the ER was going to put it into my neck if the wrist didn't work.

When this hospital does a Picc Line, they use a tiny sonogram machine and insert the line. Then, a chest x-ray is taken and the Radiologist reads it to let them know that it's in the right place so that they can administer medication. Sounds simple, right?

Wrong!

My picc line went in at 11am (I had just taken my pain and anti-nausea medication at 10am). The chest x-ray was about 20 minutes after the picc line was placed. However, the nurse started to get REALLY upset because it was going on 5pm, and I hadn't had ANY medication. Thankfully, I have awesome friends who came to visit and kept me distracted from my stomach and vomiting the entire time. =)

Finally, the nurse came in and told me that the picc was a bit too far and was in the right atrium of my heart. So, the picc nurse had to come back in and pull it back into place. That was around 5:15pm. I finally got another chest x-ray and it was the same technician. He told me that he made the mistake and my x-ray fell through the cracks because he did about 20 chest x-rays in a row. He then proceeded to tell me how he likes to x-ray things in his spare time. He's x-rayed his iPhone, ipad, galaxy s, a campbell's soup can, and seashells. There are some really interesting people in this hospital.

The nurse last night, named Lora (yes, I am going to call her out on this blog because she was really horrible to me), really upset me and I will be writing a letter about her to the person in charge.

I guess she was mad that I made her work, I'm not sure. She treated me like I was a drug junkie last night because I couldn't sleep and wanted my pain medicine. The nurse just got angry with me. She asked what my pain level was on a scale of 1 to 10. I said 6. She snapped at me and asked if it ever went below a 6. I replied to her that if it did, I would answer with a number less than 6! My pain is intense, consistent, and makes me cry. Get off of my back and try to be a bit sympathetic.

This bothers me because I'm on the Oncology floor (it's the overflow floor for GI). If she treated ME this way, how does she treat cancer patients? That just really pissed me off. She wasn't a nice person. I hope I don't have to see her again while I'm here. Maybe I caught her while she was having a bad night, I don't know. I'm not a bad patient and I'm usually a good one but I wanted to take my IV line and strangle her with it. I was really angry. I hope that she's nicer to the other patients on this floor because if my grandfather had EVER been treated this way, I would have ripped that person a new asshole.

I had four friends come and see me today. I've gotten a lot of kind words on facebook and I know some really awesome people. Without their support, I would be extremely depressed. Thanks to all of you who read this blog and thanks to those of you who have responded to me and for the support. It really does mean a lot. I wasn't expecting this blog to be as popular as it is. I'm going to write another entry about Day 3 tomorrow. I hope to get some sleep tonight now that the picc line is in and the stupid IV pole won't yell at me every 5 minutes when I try to sleep. Having an IV in your wrist is horrible. >.<


My Picc Line.



Monday, August 6, 2012

Smart Pill

I got up and was at the doctor by 7:30am this morning in order to ingest my Smart Pill. The nurse sat me down in a room and told me to ingest a block of fiber. It tasted like a really dry granola bar. It was a small block of granola with some cranberries. So, I ate the block, which made my mouth tired from chewing, and sat there. The nurse came back in with my Smart Pill. What the nurse doesn't tell is how big the damn Smart Pill is!


The edge of it was sharp and metal. So, as I swallowed the pill, it cut my esophagus ALL OF THE WAY DOWN! Ouch. My eyes watered and I could taste a bit of blood. The nurse just told me to keep drinking water. Eventually, it stayed down but it gave me this weird feeling like it was stuck. I still feel like the Smart Pill is stuck in my stomach.

I have to keep a diary of everything for the next five days. It's going to be hard for me document everything. I can't take ANY anti nausea medications. That's going to suck because I'm really nauseated. I haven't really eaten anything so I haven't vomited. The doctor DID confirm that I've lost 24 pounds since my last visit with my weigh in today. That should prove that I've been ill. I haven't lost this weight on purpose. I actually have cheek bones again. I didn't want to starve myself to lose weight though.

The nurse said that I should document my food intake as well but I just have not been hungry. That block of stuff I ate this morning is still sitting in my stomach and it burns. I hope they'll be able to see a correlation of when the burning started and what part of the digestive process it coincides with. I guess I should make myself eat but I just can't bring myself to.

I can't take anything that may affect motility or my test. The Smart Pill will give readings to the data receiver I wear in real time to give the transit times of my digestive system. It will confirm that I have delayed gastric emptying or may show other issues as well. Despite what some people may think, it does not take pictures.

I forgot to ask the nurse if my muscle relaxers were safe but they probably affect motility times as well. I'm not sure how I'm going to get to sleep tonight. The pain of my stomach plus my knee is indescribable.

Also, you have to keep the receiver with you. It's like carrying an old cell phone from the 80s or an over sized pager. It cannot be more than 4 to 6 feet from your body at all times, even when you shower. I have a belt clip for it. The nurse gave it to me with a lanyard earlier but Jesse made her give me a belt loop so it wouldn't constantly hit my stomach as I walked. I did almost vomit up the Smart Pill in the car ... that would have ended badly.

I do not look forward to that because:

A. The Smart Pill is huge
B. It has sharp metal edges that hurt going down

Well, I guess I'll keep you updated on my progress.

I meet with the doctor for the results on Friday at 8:20am. Below is the Smart Pill and the data receiver I have to wear until Friday.